Seeking help for Adeline

Please. Please, if anyone can help.

Our daughter, Adeline, has an extremely rare genetic disorder, called CMMRD. Constitutional Mismatch Repair Deficiency Syndrome. I feel sick typing it and don’t want to say it out loud. Please take a minute to read about it here.*

The thought of the suffering Adeline faces brings me to my knees. Like all parents, we would give our lives for her to not have inherited this from us. Guilt, anger, fear…  I don’t have words.

Adeline needs your love, your prayers and power of positive energy. Please keep her in your heart.
We will not rest until we find a way to help Adeline. We are limited in our abilities and resources, so we are asking for help from all our family and friends, and all their friends, acquaintances, peers, and neighbors.  Information, knowledge and access are what we need for Adeline right now. Can anyone put us in touch with…

• Geneticists in the field of gene therapy
• Pharmaceutical industry leaders/professionals
• The best pediatric care facility
• People familiar with initiating awareness campaigns to gain access to research and trial medicines
• Ways to lessen environmental exposures to carcinogens

Tests to rule out existing cancers and establish baselines will begin very soon. Adeline faces lifelong invasive testing… I am sure that we cannot fathom the extent of anguish we will feel in the coming days, weeks and months.

Please, if you have anything that can help us help Adeline, email adelineprevails@gmail.com. 

With Love,                           
 Ed and Christine Eick

* Constitutional Mismatch Repair Deficiency Syndrome (CMMRD)