Yesterday afternoon, we received the news no parent ever wants to hear. Our sweet Adeline was diagnosed with brain cancer, a grade III glioma, known as an anaplastic astrocytoma.
Adeline will need to begin treatment (likely immunotherapy) as soon as she heals from her brain surgery. She will need infusions every two to three weeks. We don’t know for how long, or the side effects. We fully trust her incredible team of doctors and experts and are staying SO POSITIVE for our hero, Miss Adeline.
For now, WE ARE GOING HOME! Adeline was discharged from the PICU this morning and can’t wait to play with her toys, sleep in her Minnie Mouse bed, see her kitty cat, and be with her cousins!
Please keep sending your positivity and light into the universe for sweet Adeline. She will prevail!
After an extremely long day, two surgeries, and two MRIs, Adeline is in recovery! The tumor was fully resected, and now we wait for the pathology report and grading of the tumor.
Though Adeline was in a lot of pain post-surgery and remains in the ICU, she is doing very well and is getting better every hour! Dr. Storm, Adeline's neurosurgeon, called her a “champ,” and said everything was going well and as expected for the post-op recovery.
THANK YOU for the continued love and support. The GoFundMe that was created by our family reached a milestone this week, and we have been so touched, overwhelmed, and grateful for the continued generosity, love, care, kindness, support, thoughts, and prayers.
Tomorrow we celebrate Adeline's third birthday. We have so much to be grateful for. #adelineprevails
Thank you so much to everyone who has asked how they can help support us during this time.
Christine's sister, with the help of her and Ed's family, has organized a GoFundMe to help raise money in Adeline's fight against CMMRD: https://www.gofundme.com/adeline-prevails.
If you are able to, please share far and wide. This is a lifelong syndrome. While we remain hopeful, we know that the journey doesn't stop after Adeline's brain surgery. This is the beginning of a long road for us.
Thank you for any amount you are able to give, and if you are unable to give thank you for continuing to support us and raise awareness. It has made us feel less alone during a very scary time for our entire family.