The Goal Post Keeps Moving

Adeline had her first brain MRI two days ago. Her ultrasound, blood work, and stool sample tests from this month had all come back normal. We thought we’d hear the same about her scan. Two days ago, we were not as fortunate.

Adeline was found to have a 2cm mass on her parietal lobe that her doctor diagnosed as an astrocytoma. Devastated does not begin to cover how we feel. We spoke with Dr. Tabori at Sick Kids, one of the leading researchers of CMMRD, and he reminded us that without a biopsy we can’t confirm cancer. To call it that would be “gossip.” He, and his incredible team, will be working with our team of doctors to find out for sure what we are dealing with. And then we will go from there.

Day by day. The goal post keeps moving. But what stays the same is our bright, happy, loving girl. Adeline woke up from the MRI asking for pancakes! She loved the cast for the IV and wanted one on her other hand. Her spirit keeps us going, keeps us laughing, keeps us smiling.

Please keep the bravest little girl we know in your thoughts. Thank you for all of your support.

Love,
​Christine and Ed