Thank you so much to everyone who has asked how they can help support us during this time.
Christine's sister, with the help of her and Ed's family, has organized a GoFundMe to help raise money in Adeline's fight against CMMRD: https://www.gofundme.com/adeline-prevails.
If you are able to, please share far and wide. This is a lifelong syndrome. While we remain hopeful, we know that the journey doesn't stop after Adeline's brain surgery. This is the beginning of a long road for us.
Thank you for any amount you are able to give, and if you are unable to give thank you for continuing to support us and raise awareness. It has made us feel less alone during a very scary time for our entire family.